NF1 wasn’t just a random diagnosis. NF1 ran in my family. My father had it, his father had it, and it traced back generations through his family line. It had been passed down for years, long before anyone fully understood what it was or how unpredictable it could be. No one in my family knew that my NF1 could develop into plexiform neurofibromas, a more complex and aggressive form of tumor growth associated with NF1.
NF1 is a genetic disorder caused by a mutation on chromosome 17 that allows tumors to grow off of nerves throughout the body. These tumors are usually benign, but they can still cause serious complications depending on where they grow. Some people with NF1 only have mild symptoms, like small tumors under the skin or learning differences. Others, like me, develop plexiform neurofibromas, larger more complex tumors that grow deep within nerve bundles. These tumors can wrap around muscles, blood vessels, and bones. They don’t grow in a neat, contained way. Instead, they spread like a web through the body, making them difficult and sometimes impossible to fully remove.
In my case, plexiform tumors wrapped around the right side of my neck and extended into my back and right shoulder, where most could not be removed due to their location. Over time, they caused a major shoulder deformity, scoliosis, and a variety of other com
plications. Two of the most serious tumors grew on my spinal cord and had to be removed. I also developed smaller tumors throughout my body. Most were manageable, but some required surgery.
By the time I was a child, hospitals already felt familiar. I had my first biopsy at one year old. At four, I had my first tumor removal on my carotid artery, the tumor was the size of a grapefruit. At eight years old, I went through 24 sessions of radiation therapy. At nine, I began my first clinical trial chemotherapy. Over the years, I participated in four different clinical trial chemotherapies. I even traveled to the NIH for one of them, hoping for something that might slow the tumors. None of them worked for me. Because of how active and complicated my case was as a child, I was told that I might not live to 18 years old.
This is one of the hardest truths about plexiform neurofibromatosis: there is no guaranteed treatment. Clinical trials and pain management are often the only options. Families hold onto hope, knowing it may not bring results, but choosing it anyway.
I was homeschooled from fifth through ninth grade, which helped me manage surgeries, recovery, and pain. My education didn’t look typical, but neither did my life. By the time I reached adulthood, I had more imaging testing then i could count, at one point i was having multiple MRI and pet scans every other month. I had undergone more than 30 surgeries, including biopsies, tumor removals, and other procedures. I’ve had a brain shunt placed and multiple spinal surgeries.
My first spinal fusion happened when I was 17 because of a tumor growing on my spinal cord. During surgery, they fused my neck from C2 to C4, and it took about six months for me to return to my baseline. The hardest surgery I have gone through was my second spinal fusion.
I was 18 and had just started culinary school when my back began hurting badly. Eventually, I had to drop out. When I went to the doctor, they admitted me for two weeks to try to manage the pain caused by my scoliosis. I was released on a new pain management plan, but six months later my condition had dramatically worsened.
My neck had developed a 90-degree curvature with severe kyphosis and dislocation. There were tears in the dural sac surrounding my spinal cord. I was walking around with my C6 vertebra broken and dislocated. Doctors admitted me immediately and placed me in a gravity traction halo for three weeks. During that time, I started losing the pulse in my right foot. It became ice cold and shook uncontrollably. Surgery followed. Surgeons extended my spinal fusion from C2–C4 to C2–T12 and repaired my dural sac as much as possible.
Recovery wasn’t measured in weeks or months, it took three years for me to walk unassisted again. In the first few months, I needed help doing almost everything. Even today, I still cannot run. My right leg doesn’t always do what I want it to. It’s slower and harder to control a reminder of everything my spinal cord endured.
Throughout my life, I’ve had to relearn how to walk three separate times. At one point, I also had nerve damage in both arms after surgery, which meant more physical therapy retraining my brain and body to communicate again. Progress was slow. Sometimes frustrating. But every small improvement felt like reclaiming a piece of myself.
There were emotional battles too. I struggled with anxiety and depression, especially during my teenage years. It was hard growing up in a body that constantly changes, a body that requires constant medical intervention. It’s hard to plan a future when your health can shift overnight. Living with plexiform neurofibromatosis means living with uncertainty. Tumors can grow without warning. Surgeries carry risks. Treatments may fail. Pain can return. But it also means learning
But even then, I held onto one phrase: There’s always rain before the rainbow.
Today, at 25 years old, I am stronger than I’ve ever been. My strength isn’t measured by perfection, it’s measured by persistence. I can walk. I can work a part-time job. I can lift around 40 pounds. I can take care of myself. I can ride roller coasters. I travel and go on nature hikes. These may sound like small things, but to me, they are victories. I still live with limitations. I still live with pain. My right leg is different. My spine is fused. Tumors are still present and noticeably visible. But I am living, not just surviving.
What has kept me going is love. Love for my family. My two best friends. My long-term relationship. My pets, especially my cats, and nature. Nature reminds me that life is still beautiful, even when it’s unpredictable. I dream of traveling, seeing new cultures, and experiencing the world beyond hospital walls.
Neurofibromatosis has taken a lot from me. It has taken time, mobility, and certainty. But it has also given me perspective. It has taught me patience, resilience, and gratitude for things many people never think twice about.
Along the way, I’ve also found small things that help me manage daily discomfort. Warm showers, heating pads, and gentle yoga help, and products like Jordan Essentials Helio or Copa-Calm Sticks and DSS have helped my muscles relax and not hurt as much, especially on more difficult days. Magnesium lotion has also helped with the itching that comes from the tumors. They aren’t cures, but they are simple, natural tools that make my day-to-day life a little more comfortable and manageable.
I am not defined by my disorder. I am defined by how I live with it. Every day, I continue choosing hope, curiosity, and determination. My story isn’t one of defeat, but of endurance and of a life that keeps expanding in ways I once thought were impossible. The future may be uncertain, but it is also open, and I move toward it with strength, gratitude, and quiet confidence.
I am still here.
Still walking.
Still hoping.
Still finding rainbows.
A deep commitment to ingredient transparency is at the heart of our product philosophy. Our No-No List is a collection of ingredients we refuse to use—like parabens, phthalates, DEA, mineral oil, and artificial dyes. Instead, we use food-based, plant-powered ingredients that truly support the skin and body. Our products are made in fresh batches and follow Good Manufacturing Practices (GMP) to ensure safety, purity, and quality.
Essential oils are more than just beautiful scents—they’re powerful plant allies. At Jordan Essentials, we work with certified aromatherapists to create blends that support relaxation, focus, immune function, skin health, and more. Whether in a magnesium lotion, roll-on, or spray, our essential oils are carefully chosen for their benefits and blended for both effectiveness and safety.
One standout ingredient is Copaiba, a natural resin that interacts with the endocannabinoid system, offering benefits similar to CBD—without the psychoactive effects. It’s known for its anti-inflammatory and anxiety-reducing properties, making it an ideal addition to Jordan Essentials products that support emotional and physical well-being.
Non-toxic living also includes your cleaning products, air quality, and daily routines. Choose biodegradable cleaners with essential oils, use a diffuser instead of synthetic sprays, and be mindful of everything you and your family bring into your home. These small changes can have a big impact over time.
Your wellness matters—every product, every ingredient, every choice.
At Jordan Essentials, we’re proud to offer products that empower you to take control of your health and your home. Whether you’re on a healing journey or simply want to live cleaner, we’re here to support you every step of the way.
When it comes to personal care, one of the most important—and often overlooked—decisions is the type of deodorant we use. Many mainstream deodorants contain aluminum, an ingredient used to block sweat by clogging pores. However, growing awareness of health concerns associated with aluminum has led to a shift towards aluminum-free options. At Jordan Essentials, we are committed to offering safer alternatives, and our Spritz Your Pits Collection is a testament to that.
Health Concerns One of the biggest reasons to switch to an aluminum-free deodorant is the potential health risks. Research has raised concerns about the links between aluminum-based antiperspirants and health issues, including breast cancer and Alzheimer’s disease. Although the research is still inconclusive, many people prefer to minimize their exposure to aluminum as a precautionary measure.
Hormone Balance Aluminum has been shown to mimic estrogen, which can potentially throw off your hormone balance. For anyone seeking more natural hormonal support, particularly those experiencing stress or imbalances, aluminum-free deodorants can be a small but impactful change.
Gentler on Skin Aluminum-based deodorants are designed to block sweat, which can sometimes lead to irritation, particularly for those with sensitive skin. The combination of aluminum and artificial fragrances can cause rashes, redness, or discomfort. In contrast, aluminum-free deodorants, like those in our Spritz Your Pits Collection, use natural ingredients that soothe and protect the skin rather than irritate it.
Many people use the terms “deodorant” and “antiperspirant” interchangeably, but they are different. Deodorants are designed to mask or neutralize odor caused by bacteria on the skin, while antiperspirants use aluminum-based compounds to block sweat glands and reduce moisture. The downside of antiperspirants is that they interfere with your body’s natural cooling process—sweating. Deodorants, especially aluminum-free ones like Spritz Your Pits, allow your body to do its job of sweating, while keeping you smelling fresh and clean without harmful chemicals.
We know you want a deodorant that works and nourishes your skin. That’s why we created the Spritz Your Pits Collection, a line of aluminum-free deodorants that use powerful natural ingredients to neutralize odor and keep you fresh all day.
Witch Hazel and Aloe for Skin Support
Our formula is also packed with witch hazel and aloe, two ingredients that soothe and calm the skin while helping to tighten pores naturally. Witch hazel acts as a natural astringent, while aloe adds moisture and provides anti-inflammatory benefits, making it perfect for those with sensitive skin.
Essential Oils for a Fresh Scent
No artificial fragrances here! We’ve added a blend of essential oils to give you a refreshing, natural scent without any harmful chemicals. Whether you prefer citrusy or floral notes, there’s a Spritz Your Pits scent to match your style, all while keeping you fresh and odor-free.
Switching to an aluminum-free deodorant is a small yet significant step in adopting a healthier, more natural lifestyle. With Jordan Essentials’ Spritz Your Pits Collection, you can feel confident knowing you’re making a safer choice for both your body and your overall wellness.
So why wait? Spritz Your Pits with the power of nature, and experience the difference that aluminum-free deodorant can make in your daily routine. After all, self-care should feel good and be good for you!
Welcome to National Handwashing Awareness Week, where a simple act holds the key to unlocking a world of wellness! From December 5th to 11th, we celebrate the power of clean hands in preventing illness and fostering a healthier community. In this blog post, we’ll explore the profound benefits of handwashing and how this daily ritual goes beyond a hygiene routine—it’s a safeguard for life.
🌱 Elevate your handwashing experience with Plant-Based Foaming Hand Soap! Available in eight signature scents including Sugar Plum for the season.🌿✨ Crafted with love and natural ingredients, this foamy soap cleanses and moisturizes – perfect for those frequently hand washers. 💧👐
1. Disease Prevention: The first line of defense against various illnesses is right at our fingertips—literally. Regular handwashing is a potent shield against the flu, colds, and other contagious infections. By eliminating germs on our hands, we not only protect ourselves but also contribute to community well-being.
2. Breaking the Chain of Infection: Hand hygiene acts as a disruptor in the chain of infection, preventing the spread of harmful microorganisms. As we wash away bacteria and viruses, we play a crucial role in halting the transmission cycle, fostering a healthier environment for everyone.
3. Food Safety: For those passionate about creating culinary delights, handwashing is a fundamental step in ensuring food safety. Whether at home or in a professional kitchen, keeping hands clean before cooking or consuming meals prevents the transfer of contaminants and preserves the integrity of our culinary creations.
4. Daily Defense: Our hands are the bridge between our personal spaces and the world at large. Making handwashing a daily ritual, whether at home, at work, or on the go, establishes a formidable defense against unseen threats. Clean hands become our trusted armor, shielding us from potential health hazards.
5. Cultivating Healthy Habits: Beyond personal wellness, handwashing is a habit worth passing down through generations. Educating our children and loved ones about the significance of hand hygiene ensures a legacy of health-conscious individuals. By instilling this habit early on, we contribute to a future where clean hands are second nature.
As we commemorate National Handwashing Awareness Week, let’s elevate hand hygiene from a routine to a conscious choice for well-being. The power to stay healthy lies in our hands—let’s embrace it. Join the movement, spread the word, and celebrate the profound impact of clean hands on our journey towards a healthier, happier community. #HandwashingAwareness #WellnessJourney #CleanHandsHealthyLife
Jordan Essentials Foaming Hand Soap:
Plant-Powered Clean: Say goodbye to chemicals. The foaming hand soap is a clean, conscious choice
Gentle Hydration: Experience effective cleansing without stripping moisture. Your hands will feel refreshed and revitalized after each wash.
Continuous Moisture: Keep hands moisturized, even with frequent washings. Embrace softness and hydration, the natural way.
Eco-Friendly Commitment: Our eco-packaging makes every wash a small step towards a greener world.
Meet our BEAUTIFUL model, Annya!
Annya is the daughter of Founder Nancy Bogart. She is part of a dedicated home office team comprised of individuals with special needs, who play an essential role in creating our products and filling orders. Chances are if you order a Joyful Jordan Box, Annya, with her ray of sunshine personality, joyfully packaged it just for you.
Annya was born in Russia and adopted at age 4.5 when many children had early education and experiences. When Annya entered school, it was quickly discovered she was different than her brother Ben who is 2 weeks younger than she is. Annya had a learning disability and ADHA that would follow her through her school career and working career.
Annya’s environment, genetics, and lack of nutrition and resources did not slow her down. She has always wanted to be like other kids and worked hard. She was the chatty kid in school and was the hit of the special education classrooms, where she was surrounded by kids with mental and physical disabilities. She treated everyone like they were her best friend and never shied away from helping them be the best they could be.
When Annya was little she was visiting with a little boy with Downs Syndrome and his mother shared she loved how Annya treated him like he was any other kid. Annya promptly replied, what is Downs Syndrom? She said how do you know?
In high school, Annya decided she wanted to be a para-professional and help children. She as the classroom helper, and bus helper slowly realized the unofficial dream to help others with disabilities by reading, laughing, and helping “teens be teens” as she likes to say.
Annya went to Camp Barnabus a camp for teens to adults with special needs as a camper one year and quickly decided she was not the camper but a camp counselor role called a missionary partner designed to help a camper one-on-one even with feeding tubes and blind campers. Annya has served 7 years now as a partner.
Annya was accepted to a special program at Missouri State University Bear Power program for young adults with disabilities to get her certification in special education and actually live on campus and go to classes with other college students. Much to her parent’s hesitation and true Annya style, she said she was ready. Annya graduated with flying colors in May 2022.
Annya works at Jordan Essentials with the 25% adult special abilities workforce as a team member and inspiration. She volunteers on the weekend with her boyfriend at their church kids program.
Annya is an example of how special education helps people of all abilities bloom into amazing parts of our society and is the inspiration for Jordan Essentials hiring people with different abilities creating an adaptive workplace environment and working with agencies to place people with special needs.
Annya is truly a joyful light to all who meet her and a spark of inspiration that all who have a dream can reach.
Lessons in Lavender:
Unveiling the Beauty Benefits of Activated Charcoal in Skincare: A Closer Look at Jordan Essentials’ Clean Offerings
In the ever-evolving world of skincare, new ingredients and innovations emerge regularly, but some age-old remedies continue to stand the test of time. One such ingredient that has taken the beauty industry by storm is activated charcoal. Known for its exceptional detoxifying properties, activated charcoal has become a star player in skincare products. In this blog post, we’ll delve into the remarkable benefits of using activated charcoal in skincare, focusing on two standout offerings from Jordan Essentials: the
Clean Sweep Activated Charcoal Glycerin Soap with Tea Tree Essential Oil and the Pore Party Activated Charcoal Detoxifying Face Mask. Both products embody the brand’s commitment to clean ingredients, ensuring you not only look good but feel good too.
Activated Charcoal Glycerin Soap with Tea Tree Essential Oil
Gentle Cleansing and Exfoliation
Jordan Essentials’ Clean Sweep Activated Charcoal Glycerin Soap combines the purifying prowess of activated charcoal with the soothing qualities of Tea Tree Essential Oil. Activated charcoal’s fine particles bind to impurities, toxins, and excess oils, gently lifting them away from the skin’s surface. This deep-cleansing action helps to prevent clogged pores and breakouts, making it an ideal choice for those with oily or acne-prone skin.
Tea Tree Essential Oil, known for its natural antiseptic properties, complements charcoal’s cleansing action by promoting clear and healthy skin. This combination creates a powerhouse cleanser that detoxifies without stripping the skin of its essential moisture.
Balancing Oil Production
One of the most remarkable benefits of activated charcoal is its ability to balance oil production. It works in harmony with the skin’s natural processes to absorb excess oil without causing dryness. This makes the Clean Sweep Activated Charcoal Glycerin Soap a versatile option for all skin types, providing a balanced, fresh, and revitalized complexion.
Activated Charcoal Detoxifying Face Mask
Deep Purification and Exfoliation
Jordan Essentials’ Pore Party Activated Charcoal Detoxifying Face Mask takes skincare to the next level with its potent blend of activated charcoal and other skin-loving ingredients. This mask provides a more intensive treatment, drawing out deep-seated impurities and environmental pollutants from the skin’s pores.
In addition to activated charcoal, this mask contains moisturizing ingredients like Aloe, Sunflower Seed Oil, Green Tea Extract, and Seaweed. These ingredients work in synergy to slough away dead skin cells, leaving behind a smoother, brighter, and more refined complexion.
Revitalizing and Refreshing
A unique feature of the Pore Party Activated Charcoal Detoxifying Face Mask is its ability to invigorate and refresh tired skin. The mask’s detoxifying action not only purifies the skin but also rejuvenates it, resulting in a radiant and revitalized appearance. This makes it an excellent addition to your self-care routine, especially when you need a quick pick-me-up.
Embracing Clean Beauty with Jordan Essentials
What sets Jordan Essentials’ activated charcoal skincare offerings apart is their commitment to clean ingredients. The brand’s dedication to using only the best and most natural elements ensures that your skin receives the care it deserves without any harmful additives. Whether you’re cleansing with the Clean Sweep Activated Charcoal Glycerin Soap or indulging in a spa-like experience with the
Pore Party Activated Charcoal Detoxifying Face Mask, you can trust that you’re pampering your skin with the goodness it craves.
Activated charcoal has rightfully earned its place in the skincare spotlight, and Jordan Essentials has harnessed its potential with two standout products: the Clean Sweep Activated Charcoal Glycerin Soap with Tea Tree Essential Oil and the Pore Party Activated Charcoal Detoxifying Face Mask. From purifying and balancing to revitalizing and refreshing, these offerings demonstrate the multiple benefits of incorporating activated charcoal into your skincare regimen. With Jordan Essentials’ dedication to clean ingredients, you can confidently embrace the power of activated charcoal and treat your skin to the ultimate spa-like experience.
Unveiling the Marvels of Peppermint Essential Oil: A Journey of Benefits and Precautions 
**Good morning, and welcome to a day dedicated to the wonders of Peppermint Essential Oil!**
Are you ready to discover the captivating story behind that invigorating peppermint essential oil we all cherish? Prepare to be amazed as we delve into the captivating world of Mentha x Piperita, the creative hybrid of spearmint and water mint that has taken the wellness scene by storm! 
The Birth of a Multipurpose Marvel 
A Breath of Freshness and More! 
Imagine capturing the essence of a brisk breeze within a single leaf – that’s the enchanting aroma of Peppermint Oil! Not only does it invigorate your senses, but it’s also a secret weapon against stubborn sinuses and headaches. A touch in your lotion or a few drops in your diffuser, and you’re on your way to a refreshed you. 
The Powerhouse for Aches and Soothing 
Your Travel Companion and Tummy Ally 
Calling all jetsetters and seasickness warriors – Peppermint’s here to save the day! Whether you’re soaring across continents or weathering a rocky boat ride, this oil possesses the enchanting ability to ease travel woes, curb nausea, and restore your inner balance. 
And if digestive distress strikes, fear not! Peppermint’s anti-spasmodic prowess makes it your ultimate tummy ally. A touch of Jordan Essentials Peppermint Magnesium Lotion can go a long way in soothing even the most tumultuous stomach days. 
A Superstar for All Aspects of Life 
From reinvigorating your respiratory system and boosting mental alertness to aiding digestion and supporting musculoskeletal wellness – Peppermint Essential Oil is the superstar that’s got it all covered. Drop a if peppermint is your go-to essential oil for a vibrant life! 
Remember, these posts are a blend of information and entertainment, designed to bring you valuable insights and a sprinkle of joy. 
Stay tuned for more intriguing discoveries on your wellness journey!
All Jordan Essential Oils are 100% pure, with no pesticides and maintain Jordan Essentials high standard of quality. Jordan Essentials does not claim to cure any illness. Check with your doctor before use if pregnant, nursing or taking medications. These statements are not reviewed or endorsed by the FDA.
There’s something truly invigorating about the scent of lemon—it’s like a burst of sunshine in a bottle. The citrusy aroma can uplift your soul and brighten even the dullest of days. 
...come to those who sign up for our emails.
Thanks for joining! Look for your first email to arrive soon!
Click an image to Pin
